Because of Covid-19 restrictions, and out of concern for the health of our Cystinosis patients and their families, the Cystinosis SA Board sadly decided not to hold our Annual Gathering this year which up until now has been held annually in late November and is eagerly anticipated by our families.

However, we did not want our families to feel TOO disappointed, and so we packed and couriered each family a parcel.

In each parcel was a gift for our Cystinosis children, biscuits, sweets and biltong, a Shoprite voucher for the parents , hand sanitiser, adult and child sized “Cystinosis” face masks as well as Christian devotional books and tracts , photographs of last year’s gathering and an individual letter from Gail to each family.

We trust and pray that the parcels will encourage and help our families during this trying time, and that next year we will be able to meet again in person