The Cystinosis Support Group South Africa (now called the Cystinosis Foundation South Africa), was established in 2010 by Colin and Gail Daniels.

Rare Disease Day 2019

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Rare Disease Day events are down to...