Cystinosis is a Non Profit All Volunteer Organisation that is registered with the Department of Social Services of South Africa. The Cystinosis Support Group South Africa (now called the Cystinosis Foundation South Africa), was established in 2010 by Colin and Gail Daniels.
Who we are
- Raise awareness
The CFSA is a registered with the Department of Social Development (NPO 084-336) is an all- volunteer NPO and is managed by a Board and guided by Professional Advisors
“To provide emotional and informative support to all diagnosed with Cystinosis in South Africa, as well as their families, in order to create a sense of community”
To provide a forum and social network for patients and their families to share personal experiences and provide sympathetic understanding.
To ensure that the medical needs of cystinotics are timeously and effectively addressed through lobbying and advocacy amongst health professionals.
Co-Founder and Chairperson
Co-Founder and Treasurer
Judy Kerrich Walker