Cystinosis Foundation South Africa (CFSA) is the only charity in South Africa working on behalf of the families affected by Cystinosis.

Rare Deserves Care!

“You can make a difference by supporting our Projects!”

Our Projects

1: Care Packages

2: Food Vouchers

3: Donate your Birthday

4: Annual Family Event

* Tax-deductable | Request a Section 18A Receipt.

Project 1: Care Packages

Cystinosis Foundation South Africa Care Package

SPONSOR A CARE PACKAGE

Our Care Package Program is a heartfelt way to support families on the Cystinosis journey. Whether newly diagnosed, hospitalized, far from home, or simply in need of encouragement, each package is thoughtfully prepared with love.

Packages include practical items and carefully put each bag together to suit each case.

➺ Newly Diagnosed Care Bag — R400
➺ In Hospital Care Bag — R400
➺ Winter Care Bag (June) — R600
➺ Xmas Care Bag (Dec) — R600
➺ Toiletry Bag — R100
➺ Help fill a Care Bag — R100
➺ Knit Beanies, Mittens & Scarves

SIBLINGS PACKAGE

In the shadows of medical appointments and daily challenges, siblings often carry quiet courage. A gentle reminder that they, too, are part of this journey, deeply loved and not forgotten.

We would like to thank Friends of the Foundation for sponsoring the Siblings Care Packages.

Morning Gail, we receive the Care Parcel and the voucher Thank you so much Mother we appreciate every day being around you,Thank you

Please send this message to our sponsors :

“THANK YOU FOR BEING OUR BIGGEST CHEERLEADERS WE APPRECIATE EVERY LITTLE THINGS YOU DO FOR US EVERY DAY, WE ARE SO GRATEFUL TO HAVE YOU, YOUR LOVE AND SUPPORT IS ALWAYS COMFORTING US

THANK YOU”

From a Family in Butterworth

Winter Care Bag (June 2026)

Hi aunty Gail we did receive the parcel we thank God & you with the church the work you doing I wish God can bless you all more

From Lusanda - Lusanele's Mom

Winter Care Bag (June 2026)

Hi aunt Gail we received the Care package today thank you very much to you,Lisa&Wayne and the Cystinosis foundation board we appreciate it.

From a Lisa & Wayne

Winter Care Bag (June 2026)

We dearly appreciate all the gifts,voucher,prayers and messages it means alot my kids are so gratefull for recieving them and as a single parent I really appreciate it ,it fulfill places im not able to touch i always know when im feeling down there are also mothers out there who’s kids has the same condition we wouldn’t being able to get it all worked out and done without the Cystinosis foundation,Giving us hope and more knowledge on how to take care of kids with Cystinosis highly appreciated

With lots of

From Latoya, Lathom and Anisha

Winter Care Bag (June 2026)

Project 2: Food Vouchers

FOOD VOUCHERS

Cystinosis brings many challenges – putting food on the table shouldn’t be one of them.

Through our Food Voucher Project, we provide grocery vouchers twice annually to help ease the financial burden on families.

Each family receives:

R1 500 per family with 1x cystinotic child
R2 000 per family with 2x cystinotic children

Diet is very important as it plays a supportive role in managing complications.

We use PAXI Couriers to send parcels with vouchers or send to the family via Checkers Money Market.

Project 3: DONATE YOUR BIRTHDAY

DONATE YOUR BIRTHDAY!

Turn your celebration into a blessing. Celebrate your birthday in a meaningful way by hosting a Party with a Purpose.

Instead of receiving gifts, invite your friends and family to donate to the Cystinosis Foundation in your name. Whether your gathering is big or small, you can make a lasting impact.

Where does your birthday donation go?

All donations will go directly to our Food Voucher Project, supporting our families living with Cystinosis.

Our goal is to provide two R1500 grocery vouchers per family each year (in June and December).

Vouchers are purchased at Checkers and delivered via Pep-Paxi or handed over at our Annual Family Gathering.

Project 4: ANNUAL FAMILY GATHERING

ANNUAL FAMILY GATHERING

Our Cornerstone Event

Our Annual Family Gathering (AFG) represents the pinnacle of our yearly activities and serves as the most anticipated event for our member families. This gathering provides invaluable opportunity for families to come together, share their experiences, and offer mutual encouragement in a supportive environment.

For children with cystinosis and their siblings, the AFG transforms into a day of joy and connection, carefully orchestrated by our dedicated volunteer team. Our Cape Town AFG has grown into a beloved tradition that continues to strengthen our community bonds.

Approximately R70,000 needed for the 2025 family gathering!