Dec 21, 2021 | Uncategorized
It has now been 2 years since we were able to host a Christmas Annual Gathering for our Cystinosis families due to Covid-19 restrictions in 2020 and 2021. So our families have missed out on the joy of meeting together, getting to know each other, a delicious Christmas...
Nov 19, 2021 | Uncategorized
The Foundation hosted a Low Tea on the 6th November at Emmanuel Church, Bellville, the purpose of which was to raise funds for the benefit of our families (as is all our fund raising!!) We have hosted many High Teas in the past, but because of Covid Restrictions we...
Jan 3, 2021 | Uncategorized
The Board of the Cystinosis Foundation South Africa were very excited when Gail was approached by the owner/manager of the van Riebeeckshof Spar in van Riebeeckshof, asking if we would like to place “small change tins” at their 9 check-out tills. We gratefully...
Jul 1, 2020 | Uncategorized
Read all about it here
Oct 14, 2019 | Uncategorized
“Cystinosis is a debilitating and progressive disease, and new treatment options are sorely needed. The current standard of care does not avert deterioration; at best, it can attenuate symptoms. That’s why gene therapy is particularly exciting: It has the potential to...
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