2020 Annual Gathering – Christmas Parcels

2020 Annual Gathering – Christmas Parcels

Because of Covid-19 restrictions, and out of concern for the health of our Cystinosis patients and their families, the Cystinosis SA Board sadly decided not to hold our Annual Gathering this year which up until now has been held annually in late November and is...
Games Night 2019

Games Night 2019

Gather Your Team & Create Your Theme Team Quiz Competition, Break for Boeries, etc. Various Games Tournaments like; 30 Seconds, Rummikub, dominoes, etc… Lots of prizes to be won !!! Gather a Team of 8 to 10 and Join in the FUN . . . Join in on the fun at our Games...

Annual High Tea

ANNUAL HIGH TEA We had our annual Fundraising High Tea at Emmanuel Church on the 2 nd March, 2019. We have it as close to International Rare Disease Day as possible. The theme for Rare Disease Day was “Show Your Rare, show you care” with this is mind, we decided on...
Rare Disease Day 2019

Rare Disease Day 2019

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Rare Disease Day events are down to...