Thank You SPAR!

Thank You SPAR!

The Board of the Cystinosis Foundation South Africa were very excited when Gail was approached by the owner/manager of the van Riebeeckshof Spar in van Riebeeckshof, asking if we would like to place “small change tins” at their 9 check-out tills. We gratefully...
2020 Annual Gathering – Christmas Parcels

2020 Annual Gathering – Christmas Parcels

Because of Covid-19 restrictions, and out of concern for the health of our Cystinosis patients and their families, the Cystinosis SA Board sadly decided not to hold our Annual Gathering this year which up until now has been held annually in late November and is...
Games Night 2019

Games Night 2019

Gather Your Team & Create Your Theme Team Quiz Competition, Break for Boeries, etc. Various Games Tournaments like; 30 Seconds, Rummikub, dominoes, etc… Lots of prizes to be won !!! Gather a Team of 8 to 10 and Join in the FUN . . . Join in on the fun at our Games...

Annual High Tea

ANNUAL HIGH TEA We had our annual Fundraising High Tea at Emmanuel Church on the 2 nd March, 2019. We have it as close to International Rare Disease Day as possible. The theme for Rare Disease Day was “Show Your Rare, show you care” with this is mind, we decided on...
Rare Disease Day 2019

Rare Disease Day 2019

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Rare Disease Day events are down to...
THE HIGHLIGHT OF OUR YEAR

THE HIGHLIGHT OF OUR YEAR

 It is with great excitement that the Board get together every year to plan our annual Family Gathering. We really try to spoil our families as they make a lot of effort to attend. We had  12  families attend out of 18 families that we have. We welcomed them with eats...