Jul 1, 2020 | Uncategorized
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Oct 14, 2019 | Uncategorized
“Cystinosis is a debilitating and progressive disease, and new treatment options are sorely needed. The current standard of care does not avert deterioration; at best, it can attenuate symptoms. That’s why gene therapy is particularly exciting: It has the potential to...
Oct 14, 2019 | Uncategorized
Yesterday was a day that will forever be remembered as a historic day for adults and children with cystinosis and their families. It’s a day that could very well mark the beginning of a world without cystinosis. Yesterday, Jordan Janz, age 20 from Consort,...
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